0
00:00:11,000 --> 00:00:20,000
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Trusted Safe Online Gambling Agencies
1
00:00:25,926 --> 00:00:28,961
Women:
I always feel like
I don't have it.
2
00:00:32,133 --> 00:00:36,201
I always know
that I don't have it
3
00:00:40,041 --> 00:00:42,908
I'd better serve the world
if I don't have it
4
00:00:43,010 --> 00:00:45,044
And I know it's true.
5
00:00:45,146 --> 00:00:46,311
I don't feel like
6
00:00:46,414 --> 00:00:50,115
there's any point in coming up
than I have it
7
00:00:54,422 --> 00:00:58,323
I think it's more than
50/50 percent chance somehow.
8
00:00:58,426 --> 00:01:00,626
It doesn't seem like
like 50/50
9
00:01:01,629 --> 00:01:03,495
Even though
is the science.
10
00:01:03,597 --> 00:01:06,432
No
feels that way
11
00:01:07,968 --> 00:01:10,803
The doctor said
that he had the envelope.
12
00:01:10,905 --> 00:01:12,938
Last night
he sent me an email
13
00:01:13,040 --> 00:01:14,039
saying that he carried the envelope.
14
00:01:14,141 --> 00:01:16,008
And then I -
15
00:01:16,110 --> 00:01:17,076
he said
that I could enter
16
00:01:17,178 --> 00:01:18,644
and get
envelopes at any time
17
00:01:18,746 --> 00:01:21,713
That's how
is very strange
18
00:01:21,816 --> 00:01:22,881
to have news and...
19
00:01:22,983 --> 00:01:25,584
only know that
it sits there
20
00:01:25,686 --> 00:01:28,020
So, yes,
it will be tomorrow
21
00:01:30,057 --> 00:01:31,557
Yes.
22
00:01:34,128 --> 00:01:35,761
I'm not even nervous
about dinner
23
00:01:35,863 --> 00:01:38,230
I like,
"Fuck makes dinner
for everyone."
24
00:01:38,332 --> 00:01:40,265
I'm just, like, nervous
about my life
I'm like...
25
00:01:40,367 --> 00:01:41,733
But that's a good reason
26
00:01:41,836 --> 00:01:44,036
that people are here
and they will come
27
00:01:44,138 --> 00:01:46,405
Use everything
plaid shirt
28
00:01:46,507 --> 00:01:49,174
This is 2013.
This is a shirt.
29
00:01:49,276 --> 00:01:52,277
- This is a men's shirt.
- Everyone, like, they think,
30
00:01:52,379 --> 00:01:55,314
like, you
are fashion shows.
31
00:01:55,416 --> 00:01:56,648
- How are you doing?
- Nice to see you.
32
00:01:56,750 --> 00:01:58,117
It's nice to see you.
33
00:01:58,219 --> 00:01:59,918
Um...
34
00:02:00,020 --> 00:02:02,621
Does anyone send you text?
and say use a checkered shirt?
35
00:02:07,795 --> 00:02:09,428
I got 9
36
00:02:09,530 --> 00:02:10,729
I can't believe you
37
00:02:13,267 --> 00:02:14,299
Ooh, wow.
38
00:02:14,401 --> 00:02:16,335
Showing it
39
00:02:16,437 --> 00:02:18,170
Damn it
Just fucking
give it to me.
40
00:02:18,272 --> 00:02:19,872
- Whoa.
- Fuck
41
00:02:19,974 --> 00:02:21,940
I just - I just, like,
42
00:02:22,042 --> 00:02:24,209
can't even
this unfortunate moment
43
00:02:27,214 --> 00:02:28,947
Oh, Christian.
I ask sorry.
44
00:02:29,049 --> 00:02:30,916
Do you remember when?
I said I have double 2s
and I really have it?
45
00:02:31,018 --> 00:02:32,251
- Now I have a double 6s. < br>> Yeah.
46
00:02:32,353 --> 00:02:35,187
You're lying.
47
00:02:35,289 --> 00:02:36,889
Actually--
Yeah, liar.
48
00:02:36,991 --> 00:02:39,291
Everyone: Wow.
49
00:02:39,393 --> 00:02:40,392
Humans:
Double 6.
50
00:02:40,494 --> 00:02:43,562
I'm Marianna Palka,
51
00:02:43,664 --> 00:02:46,932
and I'm a filmmaker.
52
00:02:47,034 --> 00:02:50,569
We're here today, I guess,
because I've decided to get
53
00:02:50,671 --> 00:02:52,137
tested for
Huntington's disease
54
00:02:52,239 --> 00:02:55,674
Getting positive
The result is, like,
55
00:02:55,776 --> 00:02:57,209
capital punishment
56
00:02:57,311 --> 00:02:59,311
And if you get it
instead,
57
00:02:59,413 --> 00:03:02,080
can only be
like everyone else
58
00:03:02,183 --> 00:03:05,184
Humans:
I've never seen you
lost this game
59
00:03:05,286 --> 00:03:07,653
I know, because
you just saw
I played once
60
00:03:07,755 --> 00:03:08,954
That's right.
61
00:03:09,056 --> 00:03:12,791
(everyone laughs)
62
00:03:12,893 --> 00:03:15,294
I remember being
a child and feeling
63
00:03:15,396 --> 00:03:17,462
completely neglected
because
64
00:03:17,565 --> 00:03:19,264
my mother and father
were so in love with
with each other.
65
00:03:19,366 --> 00:03:22,234
They, like,
really fall in love,
like, all the time
66
00:03:22,336 --> 00:03:24,570
Like, constantly taking
images with each other,
67
00:03:24,672 --> 00:03:26,138
making art
for each other,
68
00:03:26,240 --> 00:03:29,441
very much
in romantic circumstances,
like, all the time
69
00:03:29,543 --> 00:03:30,542
They will wake up
like that.
70
00:03:30,644 --> 00:03:32,211
They will sleep
like that.
71
00:03:32,313 --> 00:03:34,046
We are part of
of the little bubble,
72
00:03:34,148 --> 00:03:36,715
and then when I'm
eight, my father is sick
73
00:03:36,817 --> 00:03:38,984
and everything
is very different.
74
00:03:39,086 --> 00:03:42,854
Must move
from him and he goes
to the hospital
75
00:03:42,957 --> 00:03:45,224
That is heaven,
and then hell
76
00:03:45,326 --> 00:03:46,758
Like, just, right away.
77
00:03:46,860 --> 00:03:49,261
So that--
You're right,
it's kind of
78
00:03:49,363 --> 00:03:51,797
to some extent
a story of life.
79
00:03:51,899 --> 00:03:54,900
I mean, we happen -
we love each other
very much,
80
00:03:55,002 --> 00:03:57,302
and then once -
once beginning
81
00:03:57,404 --> 00:04:00,372
start, then he...
82
00:04:00,474 --> 00:04:03,075
because it really does
involve the mind,
83
00:04:03,177 --> 00:04:04,643
so he is unconscious
84
00:04:04,745 --> 00:04:07,279
of his actions
in some sense.
85
00:04:07,381 --> 00:04:09,014
But so far
because he is worried,
86
00:04:09,116 --> 00:04:10,482
they are
the right action,
87
00:04:10,584 --> 00:04:12,985
is very fast, of course,
business goes down.
88
00:04:13,087 --> 00:04:14,319
And there
is bankruptcy.
89
00:04:14,421 --> 00:04:15,587
That actually
does not allow
90
00:04:15,689 --> 00:04:17,956
to continue
staying with him,
91
00:04:18,058 --> 00:04:20,092
because only--
violence is involved
92
00:04:20,194 --> 00:04:22,995
As if,
you know, in the form of images,
93
00:04:23,097 --> 00:04:25,430
it was as if
a brick at once -
94
00:04:25,532 --> 00:04:29,668
each brick from
the castle
just fell,
95
00:04:29,770 --> 00:04:31,503
and now the castle < br /> just relented,
96
00:04:31,605 --> 00:04:35,540
and none of us
can hold it
97
00:04:35,643 --> 00:04:36,775
That's just...
98
00:04:38,279 --> 00:04:39,378
Yes.
99
00:04:39,480 --> 00:04:43,115
(both crying)
100
00:04:43,217 --> 00:04:45,484
Oh my goodness.
101
00:04:52,493 --> 00:04:55,160
Marianna:
The test became available
in the 90s.
102
00:04:55,262 --> 00:04:57,696
My father has started
showing signs of that
103
00:04:57,798 --> 00:05:01,166
So at that time,
we already knew that
he had it
104
00:05:01,201 --> 00:05:04,202
Basia:
I remember going out
from the clinic,
105
00:05:04,305 --> 00:05:08,040
and we
were both quite emotional.
106
00:05:08,142 --> 00:05:09,808
He said,
"When it came
For the time being,
107
00:05:09,910 --> 00:05:14,146
I will just disappear. "
108
00:05:14,248 --> 00:05:15,781
What do you mean he will do it?
go home,
109
00:05:15,883 --> 00:05:17,082
or is he < br /> will commit suicide?
110
00:05:17,184 --> 00:05:19,818
Uh...
111
00:05:19,920 --> 00:05:22,454
I think that
is a gift from,
112
00:05:22,556 --> 00:05:24,356
you know,
promise giving
113
00:05:24,458 --> 00:05:27,492
from family
doesn't have to
suffer through...
114
00:05:27,594 --> 00:05:28,994
Of course...
115
00:05:29,096 --> 00:05:31,897
it's kind of grand
gesture, but, uh...
116
00:05:31,999 --> 00:05:36,501
Over time,
That person finds themselves
117
00:05:36,603 --> 00:05:38,537
under these conditions,
118
00:05:38,639 --> 00:05:41,940
and I don't know how to
be very aware
119
00:05:42,042 --> 00:05:44,810
that person,
120
00:05:44,912 --> 00:05:49,081
to make anything
a decision like that
121
00:05:49,183 --> 00:05:52,718
Marianna:
When my father's mother started
showing those signs,
122
00:05:52,820 --> 00:05:54,886
That was
the first time my mother
heard about her illness
123
00:05:54,988 --> 00:05:57,389
Basia:
Become her grandmother,
her mother
124
00:05:57,491 --> 00:06:00,759
who has the gene obtained
passed on to him,
125
00:06:00,861 --> 00:06:02,461
but the family
doesn't know
126
00:06:02,563 --> 00:06:03,762
or doesn't talk about it
127
00:06:03,864 --> 00:06:06,198
So mom has
/> Of course, Huntington,
128
00:06:06,300 --> 00:06:08,667
it is 50/50
opportunity for children,
129
00:06:08,769 --> 00:06:10,602
and there are
four children.
130
00:06:10,704 --> 00:06:12,404
Marianna:
My oldest father
of four.
131
00:06:12,506 --> 00:06:15,207
Dan tiga di antaranya
memilikinya.
132
00:06:15,309 --> 00:06:18,543
Then,
my sister was tested
133
00:06:18,645 --> 00:06:19,578
and my cousin was tested,
134
00:06:19,680 --> 00:06:23,548
and both
have it too
135
00:06:23,650 --> 00:06:25,851
This causes trauma < br /> for everyone.
136
00:06:25,953 --> 00:06:27,786
This causes trauma
for your whole family
137
00:06:27,888 --> 00:06:29,755
And then some people
are taken and some are not.
138
00:06:29,857 --> 00:06:32,324
And it's just ridiculous
and terrible
139
00:06:32,426 --> 00:06:34,593
- It's like a nightmare.
- Yes, it's like a coincidence,
140
00:06:34,695 --> 00:06:37,729
it's like
Russian Roulette almost.
141
00:06:37,831 --> 00:06:39,698
- It's like--
- Yes, you too...
142
00:06:39,800 --> 00:06:41,933
get the gene
or you don't.
143
00:06:42,936 --> 00:06:45,404
Hi.
144
00:06:45,506 --> 00:06:48,473
They're gone.
Oh no.
145
00:06:48,575 --> 00:06:51,777
But we still
Mr. Palka!
146
00:06:51,879 --> 00:06:54,212
Oh no , he also left.
This is terrible
147
00:06:54,314 --> 00:06:57,416
Marianna:
I lost my father.
He lives,
148
00:06:57,518 --> 00:06:59,851
but he likes
ghosts live
149
00:06:59,953 --> 00:07:03,755
Grows up,
I'm always like,
"I don't have it."
150
00:07:03,857 --> 00:07:05,624
Although science
151
00:07:05,726 --> 00:07:08,059
says the probability is 50/50.
152
00:07:11,598 --> 00:07:16,201
I've experienced this
dream really euphoric,
153
00:07:16,303 --> 00:07:18,703
with birds
and forest,
154
00:07:18,806 --> 00:07:21,506
surfing or
scuba diving
155
00:07:21,608 --> 00:07:23,141
or do something
in nature.
156
00:07:23,243 --> 00:07:27,512
And then I'll wake up
and it comes crashing
down on me
157
00:07:32,052 --> 00:07:33,952
- Do you want to start?
- No.
158
00:07:34,054 --> 00:07:37,155
- (laugh)
- I'll start
I'll start
Because it's only fair.
159
00:07:37,257 --> 00:07:41,193
Thank you very much,
Marianna, for bringing
all of us together
160
00:07:41,295 --> 00:07:43,628
tonight for great
the moment for all of us
161
00:07:43,730 --> 00:07:45,197
Um, thank you.
162
00:07:45,299 --> 00:07:47,432
Thank you
so much for sharing
this with us
163
00:07:47,534 --> 00:07:49,935
and for making it
this wonderful food
164
00:07:50,037 --> 00:07:53,738
and for having us become
part of your destiny,
165
00:07:53,841 --> 00:07:57,175
which is very important
for us everyone, thank you
166
00:07:57,277 --> 00:07:59,711
Thank you, Bryce.
167
00:07:59,813 --> 00:08:01,913
Tomorrow is a big day,
and tonight is a big night,
168
00:08:02,015 --> 00:08:05,116
and not problem
what happened,
169
00:08:05,219 --> 00:08:08,787
good--
we will all be silent
here tomorrow
170
00:08:08,889 --> 00:08:11,523
And we will all be silent
love each other
171
00:08:11,625 --> 00:08:13,925
just like us
love each other now,
172
00:08:14,027 --> 00:08:17,062
and you have
173
00:08:17,164 --> 00:08:19,798
a great support group here
174
00:08:19,900 --> 00:08:23,068
Thank Thank you, Jason.
175
00:08:23,170 --> 00:08:24,870
It's very crazy right now.
176
00:08:24,972 --> 00:08:26,605
This is very real to me,
177
00:08:26,707 --> 00:08:28,473
but I'm very happy
that you are here,
178
00:08:28,575 --> 00:08:30,208
and I really love
you,
179
00:08:30,310 --> 00:08:32,344
and I feel you
support very deeply.
180
00:08:32,446 --> 00:08:35,013
You each.
181
00:08:35,115 --> 00:08:38,383
And I don't think
I really can do it
without you
182
00:08:38,485 --> 00:08:42,354
Like, I can't
have done this nonsense
without each of you
183
00:08:42,456 --> 00:08:46,091
So thank you for
there for I
184
00:08:49,129 --> 00:08:52,564
So you don't feel, like,
afraid at all now
185
00:08:52,666 --> 00:08:54,332
Now too
I'm just like...
186
00:08:54,434 --> 00:08:56,401
I am do not know
187
00:08:56,503 --> 00:08:58,837
I doubt
between denials
188
00:08:58,939 --> 00:09:01,706
- and -
- I like denial
189
00:09:01,808 --> 00:09:02,974
Denial is
190
00:09:03,076 --> 00:09:05,710
the best place to be.
191
00:09:05,812 --> 00:09:08,179
This is a cool island.
192
00:09:08,282 --> 00:09:10,048
Denial is like
a tropical island
193
00:09:10,150 --> 00:09:11,750
where are you fair,
like, bathing in...
194
00:09:14,154 --> 00:09:18,123
saltwater and,
like, eating fish
and coconut milk.
195
00:09:18,225 --> 00:09:20,725
Um, so, yeah,
I go from, like, denial
196
00:09:20,827 --> 00:09:24,462
want to know
197
00:09:24,565 --> 00:09:27,599
frustrated with impatience
198
00:09:27,701 --> 00:09:29,534
Like, I jumped all
around the map.
199
00:09:29,636 --> 00:09:31,202
I thought that was because
was very devastating
200
00:09:31,305 --> 00:09:34,339
for the whole
family the new people got,
like, really calm about it.
201
00:09:34,441 --> 00:09:36,074
People get, like,
Surprised by that.
202
00:09:36,176 --> 00:09:37,142
Humans:
But also not like -
203
00:09:37,244 --> 00:09:40,345
It's not like AIDS
or cancer
204
00:09:40,447 --> 00:09:44,316
or something
can affect one of us
at any time.
205
00:09:44,418 --> 00:09:47,185
It's like if not
in your family,
206
00:09:47,287 --> 00:09:49,187
if your mother
or your father
don't have it,
207
00:09:49,289 --> 00:09:52,624
then you know
for facts that you
don't have it
208
00:09:52,726 --> 00:09:53,992
and you don't have a chance
have it
209
00:09:54,094 --> 00:09:56,294
Humans:
I mean, that's how it is
explained to me,
210
00:09:56,396 --> 00:09:58,496
the first one allowed me
Like, some kind of hook into it,
211
00:09:58,599 --> 00:10:01,299
because it's crazy,
is someone who says
212
00:10:01,401 --> 00:10:05,203
basically parkinsonism
plus Alzheimer's.
213
00:10:05,305 --> 00:10:06,605
Marianna:
Right,
214
00:10:06,707 --> 00:10:10,609
like you lost
your body and brain
at the same time.
215
00:10:10,711 --> 00:10:12,978
You must have
written, like, your will,
216
00:10:13,080 --> 00:10:14,679
and have a
some things in place
217
00:10:14,781 --> 00:10:18,016
before you do
tests and so on...
218
00:10:18,118 --> 00:10:20,251
yes.
219
00:10:20,354 --> 00:10:23,755
Jason:
I think everyone
who met you,
220
00:10:23,857 --> 00:10:25,690
did they already know
about this or not,
221
00:10:25,792 --> 00:10:27,225
had come away saying
222
00:10:27,327 --> 00:10:30,729
it's one of the most courageous people
I've ever met.
223
00:10:30,831 --> 00:10:33,999
Even if they
don't know about
at all
224
00:10:34,101 --> 00:10:35,700
and how dare
you are in this case,
225
00:10:35,802 --> 00:10:37,602
only with this other.
226
00:10:37,704 --> 00:10:41,840
Come to New York
with, like, 100 bucks
in your pocket at 17 o'clock.
227
00:10:41,942 --> 00:10:44,643
Like, you just a
228
00:10:44,745 --> 00:10:48,346
damn congratulations, dare -
229
00:10:50,450 --> 00:10:53,918
I don't think you will ever
leave something like
230
00:10:54,021 --> 00:10:57,188
Simple as fear of stopping
you do anything
231
00:10:59,059 --> 00:11:01,226
Honestly.
232
00:11:04,231 --> 00:11:07,499
I need, like,
all of these napkins
233
00:11:07,601 --> 00:11:09,134
(all laugh)
234
00:11:13,640 --> 00:11:16,007
I see...
235
00:11:18,211 --> 00:11:20,679
Cheers, everyone.
236
00:11:20,781 --> 00:11:23,448
Alright, let's eat
this crap
237
00:11:28,155 --> 00:11:31,089
Jason:
Marianna and I
together for 11 years ,
238
00:11:31,191 --> 00:11:33,725
and now we are very
good friends.
239
00:11:33,827 --> 00:11:37,662
And, uh, that might be
my biggest fear...
240
00:11:37,764 --> 00:11:41,933
all my life
is it Marianna
241
00:11:42,035 --> 00:11:46,371
um, have this and, um...
242
00:11:46,473 --> 00:11:49,607
and, you know, so -
243
00:11:49,710 --> 00:11:52,177
So there -
there will always be
244
00:11:52,279 --> 00:11:56,047
the part that is afraid of
from me
245
00:11:56,149 --> 00:11:58,783
pay attention to his face
246
00:11:58,885 --> 00:12:00,485
tick or -
247
00:12:00,587 --> 00:12:05,557
or see his behavior
for strange things and -
248
00:12:06,893 --> 00:12:10,295
and then, you know,
and then me -
249
00:12:10,397 --> 00:12:13,231
I forgot about that and
I didn't do that, but, um...
250
00:12:13,333 --> 00:12:15,300
You know, this - this -
it's certain, like -
251
00:12:15,402 --> 00:12:20,105
it's a thing creepy
252
00:12:20,207 --> 00:12:22,707
- (laughs)
- But he doesn't.
253
00:12:22,809 --> 00:12:24,042
He doesn't have it
all that.
254
00:12:27,447 --> 00:12:29,681
- Now say?
- Well, what's that?
255
00:12:29,783 --> 00:12:32,317
- This is Bob -
- This is Bob Dylan's poem
256
00:12:32,419 --> 00:12:35,687
that Bob Dylan wrote
for Woody Guthrie when he...
257
00:12:35,789 --> 00:12:36,888
died.
258
00:12:36,990 --> 00:12:39,457
Woody Guthrie died
From Huntington's disease,
259
00:12:39,559 --> 00:12:42,360
and Bob Dylan, um...
260
00:12:42,462 --> 00:12:46,064
was captivated and taken
by his work,
261
00:12:46,166 --> 00:12:48,299
and he goes to, like, say
something at his funeral,
262
00:12:48,401 --> 00:12:51,236
at the memorial service,
and they ask him to write
263
00:12:51,338 --> 00:12:54,139
a small paragraph, and he
comes with five pages
264
00:12:54,241 --> 00:12:58,576
Man:
And he goes to see
he is in his hospital
265
00:12:58,678 --> 00:13:00,745
He goes to see him
at the hospital before dying.
266
00:13:00,847 --> 00:13:02,847
Humans:
Close enough to the end.
267
00:13:04,651 --> 00:13:06,584
"If the wind has
you are sideways
268
00:13:06,686 --> 00:13:08,086
With one hands holding
269
00:13:08,188 --> 00:13:09,587
And the others start slipping
270
00:13:09,689 --> 00:13:11,256
And the feeling is gone
271
00:13:11,358 --> 00:13:14,492
Or your sidewalk
starts curving
272
00:13:14,594 --> 00:13:15,927
or your way
too long
273
00:13:16,029 --> 00:13:20,465
Or you start walking
backwards even though you know
it's wrong
274
00:13:20,567 --> 00:13:23,368
Or lonely appears
as going down the day
275
00:13:23,470 --> 00:13:25,436
And tomorrow morning < br /> seems far away
276
00:13:25,539 --> 00:13:29,974
And you feel
control of your pony
slipped
277
00:13:30,076 --> 00:13:31,843
Because your rope
is sliding
278
00:13:31,945 --> 00:13:33,211
And your hand
is dripping
279
00:13:33,313 --> 00:13:35,914
And the sun-dotted desert
and the green valley
280
00:13:36,016 --> 00:13:38,349
Go to the ruined slums
and the passageway push the trash
281
00:13:38,451 --> 00:13:40,685
And your sky cries water
282
00:13:40,787 --> 00:13:43,655
or you
the drain pipe is pouring
283
00:13:43,757 --> 00:13:46,157
Because lightning
flashes
284
00:13:46,259 --> 00:13:47,759
and thunder
a-crashing
285
00:13:47,861 --> 00:13:49,427
And the window
roar and break
286
00:13:49,529 --> 00:13:51,396
and the roof of the house
tremble
287
00:13:51,498 --> 00:13:53,431
And the whole world
a-slamming and banging
288
00:13:53,533 --> 00:13:56,134
Or your minute from the sun
switch to storm hours
289
00:13:56,236 --> 00:13:57,936
And tell yourself
you sometimes say,
290
00:13:58,038 --> 00:14:00,004
"I never knew that
would be like this
291
00:14:00,106 --> 00:14:02,774
Why didn't they give know me?
the day I was born? "
292
00:14:04,744 --> 00:14:07,879
And you start feeling cold
and you jump from sweat
293
00:14:07,981 --> 00:14:10,815
And you are looking for something
you not found
294
00:14:10,917 --> 00:14:14,519
And you're knee deep
in dark water with
your hands in the air
295
00:14:14,621 --> 00:14:16,988
And the whole world
is watching with a window
peering gaze
296
00:14:17,090 --> 00:14:20,425
And the nice galamu leaves
297
00:14:20,527 --> 00:14:22,193
he has been flying for a long time
298
00:14:22,295 --> 00:14:25,597
And your heart
feels like a fish
when they frying
299
00:14:25,699 --> 00:14:30,068
And your bell
banging hard but you
can't hear the beat
300
00:14:30,170 --> 00:14:32,670
And you might think
your ears have been hurt
301
00:14:32,772 --> 00:14:37,575
Or your eyes
have changed swimmy
from dirt that blinds your eyes
302
00:14:37,677 --> 00:14:40,712
And there is
something in your mind
what you should say
303
00:14:40,814 --> 00:14:43,581
Someone somewhere
ody have to hear
304
00:14:43,683 --> 00:14:46,451
But it's stuck
on your tongue and sealed
in your head
305
00:14:46,553 --> 00:14:48,419
And it bothers you badly
When you lie in bed
306
00:14:48,521 --> 00:14:50,655
And it doesn't matter
how did you try it?
Can't say it
307
00:14:50,757 --> 00:14:55,727
And you're afraid of your soul
> You might just forget about it
308
00:14:55,829 --> 00:14:59,797
And the lion's mouth opens
and you look at his teeth
309
00:14:59,900 --> 00:15:02,267
And the jaw starts to close
with you underneath it
310
00:15:02,369 --> 00:15:06,504
And you're stuck
in your stomach with your stomach
hands tied behind
311
00:15:06,606 --> 00:15:09,374
And you hope you will never do it
taken the last detour
312
00:15:09,476 --> 00:15:13,278
And you say
for yourself
what I do
313
00:15:13,380 --> 00:15:14,846
On this path I walk,
314
00:15:09,948 --> 00:15:16,514
on this path I spin
317
00:15:21,488 --> 00:15:22,921
And in this air
I breathe
318
00:15:23,023 --> 00:15:24,756
And those words
I think
319
00:15:24,858 --> 00:15:26,357
And those words
I am write
320
00:15:26,459 --> 00:15:28,426
In this sea of hours
I always drink
321
00:15:28,528 --> 00:15:30,962
Who I help,
what I take
322
00:15:31,064 --> 00:15:33,464
What I give ,
what I broke
323
00:15:33,566 --> 00:15:36,401
But you tried with you
all the best souls
324
00:15:36,503 --> 00:15:38,903
Don't ever think
that thought,
325
00:15:39,005 --> 00:15:40,872
don't ever let
such thoughts
get land
326
00:15:40,974 --> 00:15:42,674
Or make your heart beat
327
00:15:42,776 --> 00:15:45,443
Because sometimes you
listen to them at night
come creeping
328
00:15:45,545 --> 00:15:47,312
And you are afraid that they
can make you fall asleep
330
00:15:48,748 --> 00:15:50,348
in the last hour
dreaming
331
00:15:50,450 --> 00:15:52,650
And you don't remember
for the best of your thoughts
332
00:15:52,752 --> 00:15:54,485
If it's you in
that dream scream
333
00:15:54,587 --> 00:15:57,188
And you know it's the special
thing you need
335
00:15:59,726 --> 00:16:02,760
And there is no liquor on land
to stop your brain
from bleeding
336
00:16:02,862 --> 00:16:07,265
You will find God
in your chosen church
337
00:16:07,367 --> 00:16:09,934
And you will find Woody Guthrie
at Brooklyn State Hospital
338
00:16:10,036 --> 00:16:11,803
And even though
that's just my opinion
339
00:16:11,905 --> 00:16:13,304
I might be right or wrong
340
00:16:13,406 --> 00:16:16,274
But you will find it both
in the Grand Canyon at sunset "
341
00:16:28,655 --> 00:16:30,621
- Alright, thank you love, comrade,
to come.
- Of course.
342
00:16:30,724 --> 00:16:33,992
- We will wait
there for, like, else -
- Two hours.
343
00:16:34,094 --> 00:16:35,393
He will be like -
344
00:16:35,495 --> 00:16:38,596
he'll be like,
"Yeah, see you later
in 20 minutes."
345
00:16:43,303 --> 00:16:44,736
So how do you feel?
right now?
346
00:16:44,838 --> 00:16:46,137
I just don't know what
is like
347
00:16:46,239 --> 00:16:49,140
If I have a
gene that's positive,
348
00:16:49,242 --> 00:16:52,543
then that means I have
a number of repetitions,
349
00:16:52,645 --> 00:16:53,978
and then more
repeat what I have,
350
00:16:54,080 --> 00:16:56,481
like,
the faster the onset.
351
00:16:56,583 --> 00:16:59,650
Bryce: And if the result is
352
00:16:59,753 --> 00:17:01,619
> negative, then that's just -
353
00:17:01,654 --> 00:17:04,522
you just walk away
There are, like, no?
354
00:17:04,624 --> 00:17:08,359
If the results are negative,
then we all just leave. ..
355
00:17:08,461 --> 00:17:11,496
- to the strip club
- (all laugh)
356
00:17:11,598 --> 00:17:13,498
We just go home,
we just go home and
357
00:17:13,600 --> 00:17:17,335
like- -
That's what is so crazy about him,
358
00:17:17,437 --> 00:17:21,339
No - it's
two different ones...
359
00:17:21,441 --> 00:17:24,308
- Reality
- Yeah.
360
00:17:24,411 --> 00:17:25,309
It's like,
this road or the road that.
361
00:17:25,412 --> 00:17:29,781
There is no center.
362
00:17:36,356 --> 00:17:38,523
Hi...
363
00:17:38,625 --> 00:17:41,592
- How are you doing?
- Doctor: Good, very good
to meet you again
364
00:17:41,694 --> 00:17:43,394
Yes, this is great
to see you
365
00:17:43,496 --> 00:17:44,962
- Can I bring my friend?
- Doctor: Oh, of course
366
00:17:45,065 --> 00:17:46,898
Okay, and also,
Dr. Perlman,
367
00:17:47,000 --> 00:17:49,901
we have cameras
because we are filming,
Is that okay?
368
00:17:50,003 --> 00:17:51,402
- Doctor: it's okay
- Good .
369
00:17:51,504 --> 00:17:54,839
- Doctor: Hi.
Very good, come on.
- Fine.
370
00:17:57,410 --> 00:17:59,877
- We will
go to the same room
- Marianna: all right
371
00:17:59,979 --> 00:18:01,879
Some of you might
have to sit somewhere
372
00:18:01,981 --> 00:18:04,248
- Good.
- All right.
373
00:18:04,350 --> 00:18:06,984
Hanya melalui sini.
374
00:18:14,561 --> 00:18:17,028
- Hi.
- Hi.
375
00:18:20,700 --> 00:18:22,200
Bryce:
Where do you want to
I sit?
376
00:18:22,302 --> 00:18:26,637
This, and you
> can be here or anywhere
377
00:18:26,739 --> 00:18:29,807
I think you mentioned you
were gathering in your house
last night
378
00:18:29,909 --> 00:18:32,076
How is that?
379
00:18:32,178 --> 00:18:33,744
- Girl : It's amazing.
- That's good.
380
00:18:33,847 --> 00:18:36,280
It's not true
a party, but that...
381
00:18:36,382 --> 00:18:37,782
is fun in its own way.
382
00:18:37,884 --> 00:18:39,584
I see...
383
00:18:39,686 --> 00:18:42,620
I have
only printed copies
384
00:18:42,722 --> 00:18:44,055
- your results
- Good.
385
00:18:44,157 --> 00:18:47,125
This is confidential. < br /> It's not in any system.
386
00:18:47,227 --> 00:18:50,561
It's yours
use what you need,
387
00:18:50,663 --> 00:18:52,964
and it does show
mutations
388
00:18:53,066 --> 00:18:57,101
So it is so
defective genes,
389
00:18:57,203 --> 00:18:59,971
Huntington's disease,
mutations
390
00:19:00,073 --> 00:19:01,806
Good.
391
00:19:01,908 --> 00:19:04,709
So we have to give > this for you
392
00:19:04,811 --> 00:19:06,844
We have to discuss it
393
00:19:06,946 --> 00:19:10,915
what you will do now
with this new information,
394
00:19:11,017 --> 00:19:15,219
and then I stop
some resources for you...
395
00:19:17,290 --> 00:19:19,223
Good.
396
00:19:20,693 --> 00:19:22,527
... what I think
you will feel helped.
397
00:19:30,603 --> 00:19:34,205
Damn... damn.
398
00:19:34,307 --> 00:19:37,041
(crying)
399
00:19:37,143 --> 00:19:40,244
Um, okay
400
00:19:40,346 --> 00:19:42,713
So I'll - yeah.
401
00:19:42,815 --> 00:19:45,550
Average people
with your mutation
402
00:19:45,652 --> 00:19:48,553
maybe
will pay attention to some
problems in
403
00:19:48,655 --> 00:19:51,055
end of 30's, 40's.
404
00:19:51,157 --> 00:19:53,057
So there is a range.
405
00:19:53,159 --> 00:19:55,893
- How old are you now?
- 32. This year.
406
00:19:55,995 --> 00:19:59,230
- So we can go
10 more years...
- Yeah.
407
00:19:59,332 --> 00:20:00,665
- no symptoms...
- None.
408
00:20:00,767 --> 00:20:02,667
... nothing you
have to deal with
409
00:20:02,769 --> 00:20:03,868
- in that case
- Good.
411
00:20:06,105 --> 00:20:09,006
apa yang telah terjadi
pola onset gejala?
412
00:20:09,108 --> 00:20:11,976
My father, like, 33,
413
00:20:12,078 --> 00:20:15,046
my cousin hasn't been able to
-
414
00:20:15,148 --> 00:20:16,881
they haven't, um,
415
00:20:16,983 --> 00:20:19,717
my cousin and brother my women -
they are both pre-symptomatic...
416
00:20:19,819 --> 00:20:20,918
- And how old are they now?
-... and they are in their 30s.
417
00:20:21,020 --> 00:20:24,088
- Fine.
- Yeah.
418
00:20:24,190 --> 00:20:25,890
All right, I guess
419
00:20:25,992 --> 00:20:29,126
I really want
take time and,
420
00:20:29,229 --> 00:20:31,262
um,
421
00:20:31,364 --> 00:20:34,398
you know...
422
00:20:34,500 --> 00:20:36,601
for, like, process.
423
00:20:38,371 --> 00:20:39,804
It could be 39,
424
00:20:39,906 --> 00:20:41,739
That is what it means.
425
00:20:41,841 --> 00:20:45,376
Can be between -
It could be, like, late 30s
426
00:20:45,478 --> 00:20:46,811
or it could be 50s.
427
00:20:46,913 --> 00:20:50,314
Oh my God.
428
00:20:50,416 --> 00:20:52,416
- Bryce: Knowing you,
Marianna...
- Girl: Yeah
429
00:20:52,518 --> 00:20:54,719
- Bryce: it's impossible
That will never happen.
- Marianna: it's impossible
430
00:20:54,821 --> 00:20:56,153
Marianna:
(crying) It could be
no, I know
431
00:20:56,256 --> 00:20:59,190
That will never happen.
432
00:21:03,029 --> 00:21:04,562
Bryce:
I don't want this
for you.
433
00:21:04,664 --> 00:21:06,998
- Marianna: I know -
- Bryce: I don't want this
for you.
434
00:21:07,100 --> 00:21:09,433
Marianna:
(crying)
435
00:21:09,535 --> 00:21:12,303
Bryce:
But you will go
fight so hard
436
00:21:14,073 --> 00:21:17,241
You will fight
and you will
make it inheritance, okay?
437
00:21:17,343 --> 00:21:20,578
Second:
(crying)
438
00:21:20,680 --> 00:21:24,882
- You, you,
you really.
- (crying)
439
00:21:47,173 --> 00:21:49,607
Good.
440
00:21:58,584 --> 00:22:00,818
Thank God
you are there
441
00:22:00,920 --> 00:22:03,521
Thank God.
442
00:22:05,425 --> 00:22:08,392
That's very good
that it's you two
443
00:22:14,000 --> 00:22:16,600
Don't you think
he'll wait
open the envelope
444
00:22:16,703 --> 00:22:18,936
- Girl: Yes
- Bryce: Yes, I did .
That's very surprising.
445
00:22:19,038 --> 00:22:21,038
I don't know what
means at first.
446
00:22:22,842 --> 00:22:26,377
Marianna:
At the very least,
This, like, ten - ten, yeah -
447
00:22:26,479 --> 00:22:30,381
at least,
This, like, eight, nine,
448
00:22:30,483 --> 00:22:33,117
is at least,
This is, like, seven more years.
449
00:22:46,065 --> 00:22:49,767
¶ Singing aye aye
yippee, aye ¶
450
00:22:50,903 --> 00:22:55,139
¶ Sing aye aye
yippee, aye ¶
451
00:23:12,392 --> 00:23:14,592
Bryce:
"Huntington's disease
452
00:23:14,694 --> 00:23:16,527
is a neurodegenerative
genetic disorder.
453
00:23:16,629 --> 00:23:19,363
Initial symptoms
are often subtle problems
454
00:23:19,465 --> 00:23:21,198
with mood or cognition. "
455
00:23:21,300 --> 00:23:24,168
That is what's going on
crazy about that
456
00:23:24,270 --> 00:23:25,903
Because like that,
"Is this a symptom,
457
00:23:26,005 --> 00:23:29,407
or I'm just
having a hard day?"
458
00:23:29,509 --> 00:23:31,976
You know, like, you don't--
"Oh my God."
459
00:23:32,078 --> 00:23:33,511
I mean, indeed
talked about
460
00:23:33,613 --> 00:23:36,080
that they
would eventually
need a food tube,
461
00:23:36,182 --> 00:23:37,748
because they would suffocate
> in their food
462
00:23:37,850 --> 00:23:40,184
"As disease progresses,
463
00:23:40,286 --> 00:23:41,952
is not coordinated
Body jerks
464
00:23:42,054 --> 00:23:45,189
become clearer
along with decreasing < br /> mental ability
465
00:23:45,291 --> 00:23:46,824
and behavior - "
466
00:23:46,926 --> 00:23:50,361
(crying)
467
00:23:52,465 --> 00:23:54,098
He is just -
468
00:23:54,200 --> 00:23:57,635
- He has the most < br /> extraordinary thoughts...
- Girl: I know
469
00:23:57,737 --> 00:23:59,737
(crying)
from anyone I know
470
00:24:05,378 --> 00:24:09,280
So, um... So, yes,
then the psychiatric problem
471
00:24:09,382 --> 00:24:12,683
and, yes, basically -
it goes into dementia.
472
00:24:14,754 --> 00:24:17,588
I just want to know
what is my life
473
00:24:17,690 --> 00:24:19,757
Like, I need to know.
474
00:24:19,859 --> 00:24:22,993
And whatever--
whatever it will happen,
475
00:24:23,095 --> 00:24:25,262
This morning I said,
476
00:24:25,364 --> 00:24:28,065
"It happened
to be beautiful.
477
00:24:28,167 --> 00:24:29,767
And I will serve it.
478
00:24:29,869 --> 00:24:32,036
I will live life that,
I will live this life.
479
00:24:32,138 --> 00:24:36,207
I spend a lot of time
480
00:24:36,309 --> 00:24:39,109
not wanting it...
481
00:24:39,212 --> 00:24:41,445
that...
482
00:24:41,547 --> 00:24:44,248
now I know
that I have it,
483
00:24:44,350 --> 00:24:46,183
I don't know...
484
00:24:49,989 --> 00:24:52,523
It's just that--
it's shocking, but also
485
00:24:52,625 --> 00:24:55,292
>
486
00:24:57,096 --> 00:25:00,097
it's no clear surprise
487
00:25:00,199 --> 00:25:01,265
And I grew up together
my cousin and my sister,
488
00:25:01,300 --> 00:25:05,069
and we all have the same
-
489
00:25:05,171 --> 00:25:07,271
we share the same
dress when we were little.
490
00:25:07,373 --> 00:25:09,240
And we do it
everything together,
491
00:25:09,342 --> 00:25:11,842
and there is
something about. ..
492
00:25:11,944 --> 00:25:14,245
no - don't have it
493
00:25:14,347 --> 00:25:16,113
that the three of us have it.
494
00:25:16,215 --> 00:25:18,916
I mean...
495
00:25:19,018 --> 00:25:20,584
It's like a dream is dead,
496
00:25:20,686 --> 00:25:21,886
and there are new dreams.
497
00:25:21,988 --> 00:25:24,788
That's all.
498
00:25:26,792 --> 00:25:28,826
Um...
499
00:25:31,297 --> 00:25:32,329
And everyone -
500
00:25:32,431 --> 00:25:34,965
You know everyone
has death.
501
00:25:35,067 --> 00:25:36,967
Everyone faces death,
502
00:25:37,069 --> 00:25:38,602
everyone of us.
503
00:25:38,704 --> 00:25:41,505
So we are all
together in that
504
00:25:41,607 --> 00:25:43,774
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