Visit www.Hokibet99.cc Trusted Safe Online Gambling Agencies
Women: I always feel like I don't have it.
I always know that I don't have it
I'd better serve the world if I don't have it
And I know it's true. </ P>
I don't feel like
there's any point in coming up than I have it
I think it's more than 50/50 percent chance somehow. </ p >
It doesn't seem like like 50/50
Even though is the science.
No feels that way
The doctor said that he had the envelope.
Last night he sent me an email
saying that he carried the envelope.
And then I -
he said that I could enter
and get envelopes at any time
That's how is very strange
to have news and...
only know that it sits there
So, yes, it will be tomorrow
Yes.
I'm not even nervous about dinner
I like, "Fuck makes dinner for everyone."
I'm just, like, nervous about my life I'm like...
But that's a good reason
that people are here and they will come
Use everything plaid shirt
This is 2013. This is a shirt.
- This is a men's shirt. - Everyone, like, they think,
like, you are fashion shows.
- How are you doing? - Nice to see you.
It's nice to see you. </ p >
Um...
Does anyone send you text? and say use a checkered shirt?
I got 9
I can't believe you
Ooh, wow. </ P>
Showing it
Damn it Just fucking give it to me. </ P>
- Whoa. - Fuck
I just - I just, like,
can't even this unfortunate moment
Oh, Christian. I ask sorry.
Do you remember when? I said I have double 2s and I really have it?
- Now I have a double 6s. < br>> Yeah.
You're lying.
Actually-- Yeah, liar.
Everyone: Wow.
Humans: Double 6.
I'm Marianna Palka,
and I'm a filmmaker.
We're here today, I guess, because I've decided to get
tested for Huntington's disease
Getting positive The result is, like,
capital punishment
And if you get it instead,
can only be like everyone else
Humans: I've never seen you lost this game
I know, because you just saw I played once
That's right.
(everyone laughs)
I remember being a child and feeling
completely neglected because
my mother and father were so in love with with each other.
They, like, really fall in love, like, all the time
Like, constantly taking images with each other,
making art for each other,
very much in romantic circumstances, like, all the time
They will wake up like that.
They will sleep like that.
We are part of of the little bubble,
and then when I'm eight, my father is sick
and everything is very different.
Must move from him and he goes to the hospital
That is heaven, and then hell
Like, just, right away. </ P>
So that-- You're right, it's kind of
to some extent a story of life.
I mean, we happen - we love each other very much,
and then once - once beginning
start, then he...
because it really does involve the mind,
so he is unconscious
of his actions in some sense.
But so far because he is worried,
they are the right action,
is very fast, of course, business goes down.
And there is bankruptcy.
That actually does not allow
to continue staying with him,
because only-- violence is involved
As if, you know, in the form of images,
it was as if a brick at once -
each brick from the castle just fell,
and now the castle < br /> just relented,
and none of us can hold it
That's just...
Yes.
(both crying)
Oh my goodness.
Marianna: The test became available in the 90s.
My father has started showing signs of that
So at that time, we already knew that he had it
Basia: I remember going out from the clinic,
and we were both quite emotional. </ P>
He said, "When it came For the time being,
I will just disappear. "</ P>
What do you mean he will do it? go home,
or is he < br /> will commit suicide?
Uh...
I think that is a gift from,
you know, promise giving
from family doesn't have to suffer through...
Of course...
it's kind of grand gesture, but, uh...
Over time, That person finds themselves
under these conditions,
and I don't know how to be very aware
that person,
to make anything a decision like that
Marianna: When my father's mother started showing those signs,
That was the first time my mother heard about her illness
Basia: Become her grandmother, her mother
who has the gene obtained passed on to him,
but the family doesn't know
or doesn't talk about it
So mom has /> Of course, Huntington,
it is 50/50 opportunity for children,
and there are four children. </ P>
Marianna: My oldest father of four. </ P>
Dan tiga di antaranya memilikinya.
Then, my sister was tested
and my cousin was tested,
and both have it too
This causes trauma < br /> for everyone.
This causes trauma for your whole family
And then some people are taken and some are not. </ p >
And it's just ridiculous and terrible
- It's like a nightmare. - Yes, it's like a coincidence,
it's like Russian Roulette almost. </ P>
- It's like-- - Yes, you too...
get the gene or you don't. </ P>
Hi.
They're gone. Oh no.
But we still Mr. Palka!
Oh no , he also left. This is terrible
Marianna: I lost my father. He lives,
but he likes ghosts live
Grows up, I'm always like, "I don't have it."
Although science
says the probability is 50/50. </ p >
I've experienced this dream really euphoric,
with birds and forest,
surfing or scuba diving
or do something in nature.
And then I'll wake up and it comes crashing down on me
- Do you want to start? - No.
- (laugh) - I'll start I'll start Because it's only fair.
Thank you very much, Marianna, for bringing all of us together
tonight for great the moment for all of us
Um, thank you.
Thank you so much for sharing this with us
and for making it this wonderful food
and for having us become part of your destiny,
which is very important for us everyone, thank you
Thank you, Bryce.
Tomorrow is a big day, and tonight is a big night,
and not problem what happened,
good-- we will all be silent here tomorrow
And we will all be silent love each other
just like us love each other now,
and you have
a great support group here
Thank Thank you, Jason.
It's very crazy right now.
This is very real to me,
but I'm very happy that you are here,
and I really love you,
and I feel you support very deeply.
You each.
And I don't think I really can do it without you
Like, I can't have done this nonsense without each of you
So thank you for there for I
So you don't feel, like, afraid at all now
Now too I'm just like...
I am do not know
I doubt between denials
- and - - I like denial
Denial is
the best place to be.
This is a cool island.
Denial is like a tropical island
where are you fair, like, bathing in...
saltwater and, like, eating fish and coconut milk.
Um, so, yeah, I go from, like, denial
want to know
frustrated with impatience
Like, I jumped all around the map.
I thought that was because was very devastating
for the whole family the new people got, like, really calm about it.
People get, like, Surprised by that.
Humans: But also not like -
It's not like AIDS or cancer
or something can affect one of us at any time.
It's like if not in your family,
if your mother or your father don't have it,
then you know for facts that you don't have it
and you don't have a chance have it
Humans: I mean, that's how it is explained to me,
the first one allowed me Like, some kind of hook into it,
because it's crazy, is someone who says
basically parkinsonism plus Alzheimer's.
Marianna: Right,
like you lost your body and brain at the same time.
You must have written, like, your will,
and have a some things in place
before you do tests and so on...
yes.
Jason: I think everyone who met you,
did they already know about this or not,
had come away saying
it's one of the most courageous people I've ever met.
Even if they don't know about at all
and how dare you are in this case,
only with this other.
Come to New York with, like, 100 bucks in your pocket at 17 o'clock.
Like, you just a
damn congratulations, dare -
I don't think you will ever leave something like
Simple as fear of stopping you do anything
Honestly.
I need, like, all of these napkins
(all laugh)
I see... </ p >
Cheers, everyone.
Alright, let's eat this crap
Jason: Marianna and I together for 11 years ,
and now we are very good friends.
And, uh, that might be my biggest fear...
all my life is it Marianna
um, have this and, um...
and, you know, so -
So there - there will always be
the part that is afraid of from me
pay attention to his face
tick or -
or see his behavior for strange things and -
and then, you know, and then me -
I forgot about that and I didn't do that, but, um...
You know, this - this - it's certain, like -
it's a thing creepy
- (laughs) - But he doesn't.
He doesn't have it all that.
- Now say? - Well, what's that?
- This is Bob - - This is Bob Dylan's poem
that Bob Dylan wrote for Woody Guthrie when he...
died.
Woody Guthrie died From Huntington's disease,
and Bob Dylan, um...
was captivated and taken by his work,
and he goes to, like, say something at his funeral,
at the memorial service, and they ask him to write
a small paragraph, and he comes with five pages
Man: And he goes to see he is in his hospital
He goes to see him at the hospital before dying.
Humans: Close enough to the end.
"If the wind has you are sideways
With one hands holding
And the others start slipping
And the feeling is gone
Or your sidewalk starts curving
or your way too long
Or you start walking backwards even though you know it's wrong
Or lonely appears as going down the day
And tomorrow morning < br /> seems far away
And you feel control of your pony slipped
Because your rope is sliding
And your hand is dripping
And the sun-dotted desert and the green valley
Go to the ruined slums and the passageway push the trash
And your sky cries water
or you the drain pipe is pouring
Because lightning flashes
and thunder a-crashing
And the window roar and break
and the roof of the house tremble
And the whole world a-slamming and banging
Or your minute from the sun switch to storm hours
And tell yourself you sometimes say,
"I never knew that would be like this
Why didn't they give know me? the day I was born? "
And you start feeling cold and you jump from sweat
And you are looking for something you not found
And you're knee deep in dark water with your hands in the air
And the whole world is watching with a window peering gaze
And the nice galamu leaves
he has been flying for a long time
And your heart feels like a fish when they frying
And your bell banging hard but you can't hear the beat
And you might think your ears have been hurt
Or your eyes have changed swimmy from dirt that blinds your eyes
And there is something in your mind what you should say
Someone somewhere ody have to hear
But it's stuck on your tongue and sealed in your head
And it bothers you badly When you lie in bed
And it doesn't matter how did you try it? Can't say it
And you're afraid of your soul > You might just forget about it
And the lion's mouth opens and you look at his teeth
And the jaw starts to close with you underneath it
And you're stuck in your stomach with your stomach hands tied behind
And you hope you will never do it taken the last detour
And you say for yourself what I do
On this path I walk,
on this path I spin </ p >
And in this air I breathe
And those words I think
And those words I am write
In this sea of hours I always drink
Who I help, what I take
What I give , what I broke
But you tried with you all the best souls
Don't ever think that thought,
don't ever let such thoughts get land
Or make your heart beat
Because sometimes you listen to them at night come creeping
And you are afraid that they can make you fall asleep
in the last hour dreaming
And you don't remember for the best of your thoughts
If it's you in that dream scream
And you know it's the special thing you need
And there is no liquor on land to stop your brain from bleeding
You will find God in your chosen church
And you will find Woody Guthrie at Brooklyn State Hospital
And even though that's just my opinion
I might be right or wrong
But you will find it both in the Grand Canyon at sunset "
- Alright, thank you love, comrade, to come. - Of course.
- We will wait there for, like, else - - Two hours.
He will be like -
he'll be like, "Yeah, see you later in 20 minutes."
So how do you feel? right now?
I just don't know what is like
If I have a gene that's positive,
then that means I have a number of repetitions,
and then more repeat what I have,
like, the faster the onset.
Bryce: And if the result is
> negative, then that's just -
you just walk away There are, like, no?
If the results are negative, then we all just leave. ..
- to the strip club - (all laugh)
We just go home, we just go home and
like- - That's what is so crazy about him,
No - it's two different ones...
- Reality - Yeah.
It's like, this road or the road that.
There is no center.
Hi...
- How are you doing? - Doctor: Good, very good to meet you again
Yes, this is great to see you
- Can I bring my friend? - Doctor: Oh, of course </ p >
Okay, and also, Dr. Perlman,
we have cameras because we are filming, Is that okay? </ P>
- Doctor: it's okay - Good .
- Doctor: Hi. Very good, come on. - Fine.
- We will go to the same room - Marianna: all right
Some of you might have to sit somewhere
- Good. - All right. </ P>
Hanya melalui sini.
- Hi. - Hi.
Bryce: Where do you want to I sit?
This, and you > can be here or anywhere
I think you mentioned you were gathering in your house last night
How is that?
- Girl : It's amazing. - That's good. </ P>
It's not true a party, but that...
is fun in its own way. </ P>
I see...
I have only printed copies
- your results - Good.
This is confidential. < br /> It's not in any system.
It's yours use what you need,
and it does show mutations
So it is so defective genes,
Huntington's disease, mutations
Good. </ P>
So we have to give > this for you
We have to discuss it
what you will do now with this new information,
and then I stop some resources for you...
Good.
... what I think you will feel helped.
Damn... damn.
(crying)
Um, okay
So I'll - yeah.
Average people with your mutation
maybe will pay attention to some problems in
end of 30's, 40's.
So there is a range.
- How old are you now? - 32. This year. </ P>
- So we can go 10 more years... - Yeah. </ P>
- no symptoms... - None.
... nothing you have to deal with
- in that case - Good. </ P>
apa yang telah terjadi pola onset gejala?
My father, like, 33,
my cousin hasn't been able to -
they haven't, um,
my cousin and brother my women - they are both pre-symptomatic...
- And how old are they now? -... and they are in their 30s.
- Fine. - Yeah. </ P>
All right, I guess
I really want take time and,
um,
you know...
for, like, process.
It could be 39,
That is what it means.
Can be between - It could be, like, late 30s
or it could be 50s.
Oh my God.
- Bryce: Knowing you, Marianna... - Girl: Yeah
- Bryce: it's impossible That will never happen. - Marianna: it's impossible
Marianna: (crying) It could be no, I know
That will never happen.
Bryce: I don't want this for you.
- Marianna: I know - - Bryce: I don't want this for you.
Marianna: (crying)
Bryce: But you will go fight so hard
You will fight and you will make it inheritance, okay?
Second: (crying)
- You, you, you really. - (crying)
Good.
Thank God you are there
Thank God.
That's very good that it's you two
Don't you think he'll wait open the envelope
- Girl: Yes - Bryce: Yes, I did . That's very surprising.
I don't know what means at first.
Marianna: At the very least, This, like, ten - ten, yeah -
at least, This, like, eight, nine,
is at least, This is, like, seven more years.
¶ Singing aye aye yippee, aye ¶
¶ Sing aye aye yippee, aye ¶
Bryce: "Huntington's disease
is a neurodegenerative genetic disorder.
Initial symptoms are often subtle problems
with mood or cognition. "
That is what's going on crazy about that
Because like that, "Is this a symptom,
or I'm just having a hard day?"
You know, like, you don't-- "Oh my God."
I mean, indeed talked about
that they would eventually need a food tube,
because they would suffocate > in their food
"As disease progresses,
is not coordinated Body jerks
become clearer along with decreasing < br /> mental ability
and behavior - "
(crying)
He is just -
- He has the most < br /> extraordinary thoughts... - Girl: I know
(crying) from anyone I know
So, um... So, yes, then the psychiatric problem
and, yes, basically - it goes into dementia. </ P>
I just want to know what is my life
Like, I need to know.
And whatever-- whatever it will happen,
This morning I said,
"It happened to be beautiful.
And I will serve it.
I will live life that, I will live this life.
I spend a lot of time
not wanting it...
that...
now I know that I have it,
I don't know...
It's just that-- it's shocking, but also
>
it's no clear surprise
And I grew up together my cousin and my sister,
and we all have the same - </ p >
we share the same dress when we were little.
And we do it everything together,
and there is something about. ..
no - don't have it
that the three of us have it.
I mean...
It's like a dream is dead,
and there are new dreams.
That's all. </ P>
Um...
And everyone -
You know everyone has death. </ P>
Everyone faces death,
everyone of us. </ P>
So we are all together in that
Submitted by: www.subtitlecinema.com